Home' Scoop : Scoop 69 Spring 2014 Contents 118
When we interviewed Ros Worthington for this edition (p122),
she lamented the reluctance of charities to unite, thanks to
competition for funding. “They don’t want to give up a piece
of the pie,” she said. However, it seems non-profits are starting
to forge enduring bonds. Saving Time, a new initiative from
Breast Cancer Foundation WA and the McGrath Foundation,
is a prime example that, says Ros, is set to knock Movember
off the top spot of the WA social calendar. DropIN, a new WA
online sharing platform is also making it a cinch for charities to
work together. And with philanthropy getting more mainstream
(just check out the Global Funding Network, which launched in
Perth this year), there’s more than enough pie to go around.
Being born with cerebral palsy may make getting around a bit tricky, but it
hasn’t stopped Daniel Pavlovic from launching a career in fashion. Support
from family and friends has helped the 21-year-old create a line of T-shirts (worn
by everyone from musician Neil Finn to The Voice’s Joel Madden), while also
getting the conversation on cerebral palsy started in the wider community.
Cerebral palsy affects the muscles in Daniel’s hands and legs, making it
difficult for him to move freely and do things most of us rarely think about,
such as swallowing, sitting or speaking. There is no cure for cerebral palsy
corrective muscle surgery has helped – and health management takes up
a big part of Daniel’s day, with physiotherapy, visits to a psychologist and
doctors, massage and regular exercise.
His Daniel.Ink t-shirt business involves the whole Pavlovic family – sister
Nathalie helps out with the administration work, his grandmother hand-sews
tags onto the T-shirts, and dad Ivan (pictured with Daniel, above) helps out
with general business management. Daniel hand-draws all the designs (he
studies visual art one day a week at Polytechnic West).
The Pavlovics wanted to “give something back”, so 10 per cent of Daniel.
Ink’s profits go to the Centre for Cerebral Palsy in Western Australia. “It’s not
about just dollars and cents,” says Ivan. ”This is Dan’s job, it gives him a future.”
Hazel Grunwaldt, of the Centre for Cerebral Palsy, provides support to
Daniel and other Western Australians with cerebral palsy.
“Every 15 hours a child is born in Australia with cerebral palsy,” says Hazel.
“There are 3500 people in WA with cerebral palsy and 33,000 Australia-wide.”
“Daniel is really inspirational and the business is great personal
development for him. I’m just so proud of him,” says Hazel.
For details and ordering, visit danielink.com.au or facebook.com/
A young man with cerebral
palsy has launched a fashion
line to raise awareness about
the condition... and is attracting
attention from the local community
and celebrities alike. words Kim Cousins
Having battled borderline
personality disorder, a WA
woman aims to de-stigmatise
the problem and bring world-
class treatment facilities to
Perth, using a fellowship from
mental health charity SANE.
When Sonia Neale was diagnosed with
Borderline Personality Disorder, her psychiatrist didn’t tell her. Although
she suspected the way she felt – excessively angry, pathologically
jealous, disconnected – marked the illness, she didn’t receive formal
confirmation until she discovered a letter to her GP five years later.
“It’s quite common for mental health professionals not to diagnose
BPD because it’s a very stigmatised diagnosis,” Sonia says. She wants
to change that. And winning SANE’s inaugural Hocking Fellowship for
mental illness advancement is just the beginning.
Sonia believes there is a huge gap in the market for dedicated BPD
services, with nothing in the way of non-government services. “There
is dialectical behavior therapy but it has to be delivered by a clinical
psychologist, so there’s limited numbers. There’s a 12-month waiting list
and it takes 12 months to complete. There needs to be something that
is cheaper, encompasses more people and also is long-term.”
She plans to observe BPD programs in the UK and US, and implement
the best bits in WA... run by people who have recovered from BPD. “Peer
work is crucial because the one person who understands someone with
BPD is someone who has it or has a recovered experience themselves.”
words Anna Christensen
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